Evidence Alliance Caregiving Investigation

INTRODUCTION This article is the tenth and final part of ten short pieces reporting the work presented on May 13, 2025. On that day we held a knowledge mobilization event to share out what we had learned from a Strategic Patient Oriented Research (SPOR) Evidence Alliance (EA) funded study to find out what research has been published on cost accounting for operating long-term care beds in institutional and family-based settings. In the previous article we argued for establishing a research priority to study long-term care cost accounting to be able to provide evidence-based data when comparing the cost of operating long-term care beds in institutional and home-based settings. In this article we articulate our call to action for cost accounting research in long-term care across Canada. 1. SCOPING REVIEW At present the cost of operating long-term care beds in either institutional or home-based settings is unknown in health research publications.  We did not find one study in our scopi...

INTRODUCTION This article is the ninth of ten short pieces reporting the work presented on May 13, 2025. On that day we held a knowledge mobilization event to share out what we had learned from a Strategic Patient Oriented Research (SPOR) Evidence Alliance (EA) funded study to find out what research has been published on cost accounting for operating long-term care beds in institutional and family-based settings. In the previous article we reported our conclusions resulting from attempting to compare costs between operating a long-term care bed in an institutional and a home-based setting. In this article we argue it is time to make evidence-based cost accounting research in long-term care a priority in research programs across Canada. 1. SCOPING REVIEW The Scoping Review revealed that there has been no evidence-based cost accounting research into operating long-term care beds published since 2014.  There was no cost accounting data available to understand the cost of operating a l...

  INTRODUCTION This article is the eighth of ten short pieces reporting the work presented on May 13, 2025. On that day we held a knowledge mobilization event to share out what we had learned from a Strategic Patient Oriented Research (SPOR) Evidence Alliance (EA) funded study to find out what research has been published on cost accounting for operating long-term care beds in institutional and family-based settings. In the previous article we reported time costs as reported in the Scoping Review, and then actual time costs collected over 33 months in a family caregiving home. In this article we compare costs reported in the Scoping Review, and the actual costs incurred operating a long-term care bed for a frail elder with complex needs in a family caregiving home (case study of one). 1. SCOPING REVIEW There were no studies in the research literature reporting evidence-based costs for operating a long-term care bed in an institutional or a home-based setting.  Where we were abl...

2021 11 13 - Mom moved home on November 1, 2021 and was immediately laid low with pneumonia, an exacerbation of her COPD. She was very weak. There were times when I sat with her as she struggled to breath and wondered, "What am I supposed to do now?" Mom was adamant that she wanted to let nature take its course. We were all supportive of her wishes. However, what did that actually look like in practice? None of us had any experience with this. I called my sister and we talked about how to handle the situation. INTRODUCTION This article is the seventh of ten short pieces reporting the work presented on May 13, 2025. On that day we held a knowledge mobilization event to share out what we had learned from a Strategic Patient Oriented Research (SPOR) Evidence Alliance (EA) funded study to find out what research has been published on cost accounting for operating long-term care beds in institutional and family-based settings. In the previous article we reported material costs as r...

Friends of the family brought us an electronic reclining chair for Mom to use for socializing and meals. Her eldest son made her a custom table for reading, writing and dining. The chair made it so we could change her position and elevate her legs as needed. She spent many hours in that chair. INTRODUCTION This article is the sixth of ten short pieces reporting the work presented on May 13, 2025 to report what we learned about research in Long-term Care Cost Accounting for institutional and home-based operations. We developed cost accounting categories derived from Project Management Institute (PMI) practice standards and frameworks. This approach divides costs into Materials (expenditures accounted by receipts) and Time (expenditures accounted by hours x rate per hour).  Scoping Review findings were extracted from a collection of 37 studies through a four stage process: 1) Search Strategy and Execution; 2) Abstract Revew and Full Text Data Extraction and Review; 3) Synthesis; and ...

2022 03 22 - Mom and Tom wrote a song, 'Around and Around'   INTRODUCTION This article is the fifth of ten short pieces reporting the work done to investigate what research has been completed to show evidence-based cost accounting for operating long-term care beds in institutional and home-based settings. The findings from this work were reported out in a knowledge mobilization event held on May 13 at Vancouver General Hospital. This was a hybrid event, with in-person and online attendance through a Zoom connection. The findings from the Scoping Review were presented by two members of the research team,  Nora Fripp, Research Scientist, Centre for Clinical Epidemiology and Evaluation, UBC Smita Roy, Master of Science (candidate), School of Population and Public Health, UBC    The findings from Family Caregiving were presented by Jenny Arntzen, Patient-Parnter Co-Lead and Primary Caregiver for a frail elder with complex needs. In this article we provide detail into the...